I am still lacking an official answer, but through elimination and trial it seems I have gluten intolerance (can't call it celiac since the often false negative bloodwork was negative). I have decided against the biopsy at this point and probably for good since it would require me to go back on gluten. I still have one more doctor to see regarding this, but don't expect anything to change. She is a newer endocrinologist focusing on metabolism and malabsorption so with my history of hypothyroidism my primary thought it would be a good direction.
It has been 1 month since I started the gluten free diet and what a difference. I have energy, the abdominal pain is gone, the weakness is gone, no more fatigue or headaches. I have even gained a few pounds and am back up to the low end of my training weight. I am a functioning human again. I've actually been really good at following the diet and have realized it really isn't too difficult with a little planning. GF food is getting better and we've found some pretty good options and some not so good ones, but you learn as you go. I've cheated twice, once on purpose: dang pumpkin pie and once on accident: duh breaded shrimp has gluten. Both times I suffered for it which tells me this really is my problem.
Over the last month I have taken to reading GF blogs and searching for recipes, it is quite interesting to me that a lot of these blogs are both GF and vegetarian/vegan. One of the surgeons I work with joked that there was a connection between vegetarianism and celiac since there is another surgeon we work with who is celiac and also a vegetarian. I'm also having fun experimenting and have found some good options. The hardest part has been quick foods since so many prepackaged things are gluten, in a way this is good as it prevents me from grabbing the cookies/desserts that are always sitting out at work. I do miss an occasional beer (still haven't tried GF beer) and have yet to find a good cereal to replace the Kashi I lived on.
Now my biggest worry is if this is something that has been passed to Ophelia. She is growing, but slowly and no matter how much I feed her she acts like she is starving. I'll discuss with her ped in a few weeks, but not worrying too much since she is getting much of her diet GF too now.